life: super powers not included

The Greatest Show On Earth

Circusphoto by shironekoeuro

Ladies and gentlemen, children of all ages! Step right up to see the most amazing, most crazy, most death-defying show on earth.

Prepare to be amazed! Enlightened!

I present to you—never before seen on this blog—the girl on fire:

EM Flare

That’s right, this is the look of erythromelalgia. (Or, as I lovingly call it, EM.) You’ll notice that one foot is normal and the other is in a full-fledged flare.

Oooh, the burning!

Ahhh, the pain!

Grab your peanuts and your cotton candy as she lights the stage ablaze. Get mesmerized by the fireworks!

And that, dear friends, is what I’ve been up to today.

Come back tomorrow for another AMAZING! and TERRIFYING! circus spectacular.

So, um, how was your Monday?

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29 comments

1 Amy @ Second City Randomness { 12.28.10 at 8:50 am }

Ick. Sorry your right foot was being really lame yesterday. :(

I pretty much spent the whole day on the road. Woot woot….

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Tracey Reply:

Hope you weren’t on the road and stuck in snow. Or worse, traffic.

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2 Anon { 12.28.10 at 8:50 am }

Yep, you’re right foot is on fire alright. That must make shoe-donning uncomfortable.
I admire you Tracey. I am going through a physical rock-bottom as well. Every day is a challenge to remain focused on myself and not get overwhelmed. I plan to start a blog, but I don’t want to mention it to much or make it a pity-party. YOU do a fantastic job of approaching it with a level, and often humorous side. I admire that, and will keep that in mind.
I do hope to start a blog soon. I think the difficult thing is title and theme. Maybe I can bounce an idea or two off of you sometime? Did it take you long to figure yours out..or did you just jump into it?

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Tracey Reply:

Oh yes, no shoe-donning for me. Flip flops it is. It definitely is tough to not turn your blog into a pity party when you’re in constant pain. I think they only way I know how is to joke about it. You can bounce a couple blog title ideas off of me, but I do think it should be personal. And, no, I’m (not) Superhuman didn’t just come to me. I made a list, crossed off any names already taken and those that might border on copyright infringement, then mulled it over for a while. Once I got my mind set on this one, I kind of really liked it!

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Anon Reply:

Think I can figure out a name in like 5 days? Did it take you long. I have some ideas, but I have a feeling they just don’t work – like in a week or two, I have more ideas or know what I’ve really like to talk about…and then want to change the blog name. That’s my problem. You have a terrific theme. I don’t really have one. I want to address my physical issues because it is a source of stress. But I do not want to focus on it. In the New Year, I want to be gracious and accepting and have faith. Not dwell on it. But it is very very difficult. I cannot do physical activity – and every day is a constant guilt-trip.

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Anon Reply:

I got a strange , strange email from someone else. I’m confused by it. Please disregard. I think the person was confused. At the very least, they were very very unkind.

3 Wei-Wei { 12.28.10 at 10:12 am }

Ugh, that looks damn painful. I think that you’re really admirable to share this with all of us… I’d feel completely overwhelmed.

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Tracey Reply:

Well, I never said I wasn’t completely overwhelmed. Totally am.

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4 Alina { 12.28.10 at 10:44 am }

So is it usually one foot and not the other? That really is a striking visual – looks so painful! I am so impressed with you for accomplishing as much as you do every week through the chronic pain.

How is the anti-inflammatory diet going, by the way?

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Tracey Reply:

You know, it’s weird. Sometimes it’s both. Sometimes just one. I can’t seem to make any sense of it. And the diet’s OK (really it’s been just no-sugar) but I think I’m going to try going gluten-free next week to see if that does anything.

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5 Heather C { 12.28.10 at 11:17 am }

Ouch! In the spirit of misery loving company, I spent the night hopped up on Tramadol, itchy as all get out and cursing my a-hole of a spine (I know, I should talk nice to it, it does do a lot for me but it pushed me too far last night and I am still bitter).

Hope the feet are both an appropriate winter white today.

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Tracey Reply:

Oooh, yours sounds painful, too. You know, my husband tells me not to curse my feet but I think you’ll agree it’s perfectly OK to curse a body part in the throes of pain. I stay bitter, too. ;)

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6 Nicole, RD { 12.28.10 at 12:48 pm }

Oh. My. Dear. Lord. You aren’t kidding when you say burning UP. I am so sorry, Tracey :(

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Tracey Reply:

Oh, I don’t kid. With me, it’s all serious all the time. ;)

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7 Lu { 12.28.10 at 12:57 pm }

Ouch. That looks painful. I’m sorry you have to go through this. You do a ton and that is admirable. Curse if you have to. You have every right.

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Tracey Reply:

Thank you! I’m totally giving these feet an earful today!

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8 Susan { 12.28.10 at 1:57 pm }

Ummm…yeah…what’s that all about there….are you ok?

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Tracey Reply:

Good question. My doctors ask the same thing…

Seriously though, yes, I’m technically OK. It’s not dangerous or anything (unless you count the times I come close to de-footing myself). Here’s a better explanation, which I wrote when I was first diagnosed with this extremely fun, rare condition.

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9 Tina @ Faith Fitness Fun { 12.28.10 at 2:23 pm }

Oh, no. That definitely doesn’t look fun to deal with.

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10 Leslie { 12.28.10 at 6:56 pm }

Tracey, I’m so sorry. And you’re amazing. Being in pain really sucks, but you’re fighting it and managing to do it in a really cool way. Thanks for sharing, and I know you’re helping people. Thinking of you!

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Tracey Reply:

Thanks, Leslie.

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11 Alex @ IEatAsphalt { 12.28.10 at 8:23 pm }

That does not look like a good time, but I’m sure the man would be happy if you brought home some extra bacon by working at a circus. Any new developments on possible treatments? I’m guessing Santa did not do a great job with presents this year.

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Tracey Reply:

No new development yet, unfortunately. Don’t tell the other kids, but I’m starting to think there’s no such thing as Santa…

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12 ashley @ ashley's adventures in alaska { 12.29.10 at 12:33 am }

You’re pretty stinkin’ amazing to go through what you do and stay so cheerful and humorous! I’m sure it’s a huge struggle, but hey- you’re actually sharing your experience with those that not only have never gone through what you have, but those that are. And that is awesome.

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13 Mary (A Merry Life) { 12.29.10 at 1:14 am }

Sorry about your foot. :( I hope you figure out treatments soon!

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14 megabrooke { 12.30.10 at 12:16 pm }

oh tracey, im so sorry that you have to deal with this not just sometimes, but all of the time. i hope that with some more time and research and feedback from doctors, that you’ll be able to find some relief from this. it’s not fair, and i wish i knew more to say than im just so sorry you’re faced with it.

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Tracey Reply:

Thanks, Meg. I hope so too.

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15 Kat { 05.22.11 at 6:54 pm }

It’s a wonderful learning contrast when it’s only one side huh? I have a similar pic with one ok hand and one swollen and flared. Lately for some reason it’s liking to hit just part of my foot (which is probably what is going on with you toes one your good foot there?) making it annoying to cool off. No I am just going to be hot here and rest of foot can be frozen. Ha ha, no sleep for you.

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Tracey Reply:

That happens to my feet often. I was originally diagnosed with Raynaud’s, not EM. And even though this is definitely EM and not a Raynaud’s rebound, I think I might have that too. It’s so annoying when you try to isolate one part of the foot without freezing the other part (not that I hate freezing feet, but I hate the rebound flares). I sometimes wrap a sock around my white, freezing toes and sit in front of the fan if the rest of my foot is hot.

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